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Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare

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dc.contributor.author Mazanderani, Fadhila
dc.contributor.author Noorani, Tehseen
dc.contributor.author Dudhwala, Farzana ...et.al
dc.date.accessioned 2022-03-31T23:33:41Z
dc.date.available 2022-03-31T23:33:41Z
dc.date.issued 2020-05
dc.identifier.citation : Mazanderani, F., Noorani, T., Dudhwala, F. and Kamwendo, Z.T. (2020) Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare, Evidence & Policy, vol 16, no 2, 267–284, DOI: 10.1332/174426420X15808912561112 sm
dc.identifier.issn • Online ISSN 1744-2656
dc.identifier.uri • https://doi.org/10.1332/174426420X15808912561112
dc.identifier.uri ${sadil.baseUrl}/handle/123456789/3636
dc.description 18 p. ; PDF sm
dc.description.abstract This paper explores how personal experience acquires the status of knowledge and/or evidence in contemporary healthcare contexts that emphasise being both patient-centred and evidence-based. Drawing on a comparative analysis of three case studies ‐ self-help and mutual aid groups; online patient activism; and patient feedback in healthcare service delivery ‐ we foreground: a) the role that different technologies and temporalities play in how experience is turned (or fails to be turned) into knowledge or evidence; b) the role that experts-of-experience, in addition to the more frequently referenced experts-by-experience, play in mediating how, when and why experience is turned into an epistemic resource; and finally, c) how the need to be ‘evidence-based’ remains a persistent, yet at times productive, challenge to how patient and user experiences are incorporated in contemporary healthcare policy and practice. Throughout the paper, we argue that it is necessary to look at both democratic and epistemic imperatives for including patient and service users in healthcare services and policymaking based on their experience. sm
dc.description.sponsorship The work presented in Case C was funded by was funded by the National Institute for Health Research (NIHR) under its Health Services and Delivery research funding stream 14/04/48. The University of Edinburgh’s Centre for Science, Knowledge and Policy (SKAPE) provided funding that contributed to the writing of the paper. sm
dc.language.iso en sm
dc.publisher Policy Press sm
dc.relation.ispartofseries Evidence & Policy • vol 16 • no 2 • 267–284 •;
dc.subject experience sm
dc.subject experiential knowledge sm
dc.subject experts-by-experience sm
dc.subject evidence sm
dc.title Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare sm
dc.type Article sm


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